HIV/AIDS Treatment Communication
Care and Support
AIDS: Palliative care (2000)
Explains what palliative care is, describes specific concerns related to palliative care in PLHA, presents challenges, and provides examples of current projects and initiatives in palliative care.
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Building Resilience in Children Affected by HIV/AIDS (2003)
"A guide to psychosocial support for children. It’s designed to help parents, caregivers and teachers understand children who are caring for a sick parent, who have lost a parent, and/or who themselves are HIV positive. It provides practical advice on supporting children who have experienced loss, and suggests helpful discussions and games. "
Caregiver Booklet: A Guide For Patients, Family Members and Community Caregivers (2004)
"Part of the Integrated Management of Adolescent and Adult Illness manual, this booklet is designed to help patients, family members, and community caregivers in the home-based care of serious long term illness."
Caring for Carers: Managing Stress in Those Who Care for People with HIV and AIDS (2000)
"The strains on those caring for people with HIV/AIDS are enormous. The quality of care they provide and their ability to do so over a sustained period depend on the protection of their own well-being and morale. Although this is well recognized in principle, care for the carers is rarely given the priority it deserves, and “burnout” is a serious problem. So what should care programs for people with HIV and AIDS be doing to minimize stress and burnout? To look for answers to this question, a consultant for UNAIDS visited AIDS Support Organizations (ASOs) in Uganda and South Africa to interview a range of people including: managers and supervisors of care teams; carers on the staff of ASOs; community volunteers; primary carers within families; and individuals with expertise in this field."
Closing the Gap (2003)
A manual to aid correction officers with discharge planning for HIV infected inmates. Includes discussion on continuity of HIV treatment during the discharge process and a discharge needs assessment form.
Counseling Guidelines for Palliative Care and Bereavement (2001)
"Despite their need for support, many people find it difficult to talk to relatives and friends about dying. The diagnosis of a terminal illness is a traumatic event and patients are often overwhelmed by their thoughts and fears. A counselor can provide the information and support they require."
Facilitator's Guide for Community Home Based Care Orientation Workshop in Myanmar (2003)
This guide provides resource materials and tools for community and home-based care (CHBC) program implementation. It was designed for use in trainings to help introduce and establish CHBC.
HIV/AIDS and Older People: The African Situation (2002)
This booklet explains the situation and role of older people in the HIV/AIDS pandemic in Africa. It goes on to describe what needs to be done regarding policy, research, information, advocacy and direct support.
HIV/AIDS Home-based Care: A guide for care-givers (1999)
"This booklet is intended to serve as a basic guide for the care of patients, especially those infected with AIDS, by families, relatives and friends in a home environment. It provides practical information on care-giving and how care-givers can avoid the risk of infection to themselves or to others."
Integrated Management of Adolescent and Adult Illness: Interim Guidelines for First-Level Facility Health Workers-- Caregiver Booklet (2004)
"This module is a guide for patients, family members, and community caregivers on home-based care of serious long term illness. This booklet should be given to the patient or caregiver and its contents explained by a nurse or community worker. The first section covers ways to prevent problems from occurring and the second section explains how to treat specific symptoms that may occur."
Integrated Management of Adolescent and Adult Illness: Interim Guidelines for First-Level Facility Health Workers--Palliative Care. (2004)
"The module covers management of symptoms during acute or chronic illness, education of the patient, family and community caregiver to provide care at home, using the Caregiver Booklet; and end-of-life care. Symptom management is very important in patients on ARV treatment. In order to expand access to palliative care, this approach assumes that most of the care will be given by the patient's family with back-up by multi-purpose health workers at first- level facilities. This module covers palliative care in both children and adults."
The Care and Support Cellule (2003)
"The Senegalese national HIV/AIDS Alliance (ANCS) provides technical and financial support to organizations caring for and supporting people living with HIV/AIDS locally. It has done this through cellules – multi-disciplinary teams that include healthcare providers, social workers, health educators and people living with HIV/AIDS themselves, to provide integrated care. This report outlines the characteristics, strengths and positive impact of the cellule approach, as well as its weaknesses. It also provides practical steps for those wishing to establish similar associations elsewhere. It includes topics such as facilitating access to medication, and mutual support among people living with HIV/AIDS."
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